Resources
Community Resources
Trach Buddy Program
Part of Family Connection Program, parents or guardians who have been through a health challenge with a child and are a few years out from the start of that challenge become Buddy Mentors who are matched up with a parent/guardian just beginning their journey.
Common Suppliers of Durable Medical Equipment (DME)
While the majority of children get things supplied through insurance, some items are not covered or not enough supply is provided. The Parker Lee Project can help fill that gap.
Community and Home Nursing Resources
Printable Guides
More Information
Golisano Children's Hospital Family Resource Library
Located on the first floor of Golisano Children’s Hospital (GCH) (room 1.1177), the Family Resource Library is staffed by a professional librarian who can help you:
- Find reliable and helpful medical information
- Set up and use MyChart
- Use an iPad or personal computer
You can visit the library during normal business hours. Or you can email, call, or send us a question through our Ask-A-Librarian service.
Phone: (585) 275-7710, Email: GCH_Library@URMC.Rochester.edu
Also see these resources for more information.
"Making effective communication a human right, accessible and achievable for all."- Bissell, C. (2008) Pediatric Tracheostomy Home Care Guide
(Jones & Bartlett Publishers - ISBN-10: 0763753866 ISBN-13: 978-0763753863)